I am ugly. There's a mathematical equation to prove it. At only eight months old, identical twin sisters Ariel and Zan were diagnosed with Crouzon syndrome - a rare condition where the bones in the head fuse prematurely. They were the first twins known to survive it. Growing up, Ariel and her sister endured numerous appearance-altering procedures. Surgeons would break the bones in their heads and faces to make room for their growing organs. While the physical aspect of their condition was painful, it was nothing compared to the emotional toll of navigating life with a facial disfigurement.
| ISBN: | 9781250895578 |
| Publication date: | 28th November 2023 |
| Author: | Ariel Henley |
| Publisher: | St. Martin's Press an imprint of Square Fish |
| Format: | Paperback |
| Pagination: | 400 pages |
| Genres: |
PSHE: Special educational needs and disability (SEND) Children’s / Teenage: Social issues / topics |